|
Patient Priorities in Research and Perspective in Patient Engagement |
|
|
Post-transplant care research priorities |
Research priorities in organ donation |
|
1. How to improve graft survival. |
1. How to educate the public and raise awareness about donation. |
|
2. How to achieve personalized use of anti-rejection drugs; better immune monitoring and decreased use. |
2. How to improve donor management and graft quality. |
|
3. How to reduce adverse effects and long-term medical complications of anti-rejection drugs. |
3. How to foster a culture of donation in hospitals and in society at large; appropriate funding for programs (coordination, social, work, etc.). |
|
4. How to improve psychological support and the management of complications such as anxiety. |
4. How to support living donors and families; understand long term impact and psychological care. |
|
5. How to improve quality of life. |
5. How to increase the number of donors (deceased and living). |
Table 1. From “Patient priorities in research and perspective on patient engagement: The results of a national workshop,” by F. Ballesteros, J. Allard, L. Wright, S. Anthony, D. Hartell, V. Dumez, M. Josée Hébert, L. West, G. Knoll, & M. Chantal Fortin (in press).