Patient Priorities in Research and Perspective in Patient Engagement

Patient Priorities in Research and Perspective in Patient Engagement

Post-transplant care research priorities

Research priorities in organ donation

1. How to improve graft survival.

1. How to educate the public and raise awareness about donation.

2. How to achieve personalized use of anti-rejection drugs; better immune monitoring and decreased use.

2. How to improve donor management and graft quality.

3. How to reduce adverse effects and long-term medical complications of anti-rejection drugs.

3. How to foster a culture of donation in hospitals and in society at large; appropriate funding for programs (coordination, social, work, etc.).

4. How to improve psychological support and the management of complications such as anxiety.

4. How to support living donors and families; understand long term impact and psychological care.

5. How to improve quality of life.

5. How to increase the number of donors (deceased and living).

Table 1. From “Patient priorities in research and perspective on patient engagement: The results of a national workshop,” by F. Ballesteros, J. Allard, L. Wright, S. Anthony, D. Hartell, V. Dumez, M. Josée Hébert, L. West, G. Knoll, & M. Chantal Fortin (in press).