This study explores, patients', their caregivers', and healthcare providers' perspectives on the best approachs to engage in advance care planning (ACP) for end-of-life (EOL) care.
To participate in this study you must be:
- an English speaking adult who has been diagnosed with advanced stage Parkinson's disease.
- an English speaking adult caregiver of patient participants.
- an English speaking healthcare provider who has direct experience supporting patients with Parkinson's disease through advance care planning for end-of-life.
- willing to participate in one 45-60 min interview (in person or by telephone/skype) and one (possible) 30-45 min follow-up interview.
Study Coordinators and Research Nurses cannot give medical advice over the phone. Telephone numbers and email addresses are provided for obtaining additional information on specific research studies only. If you have specific questions which require clinical expertise, please call your primary care physician.